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Organization: Huntington Society of Canada - Huntington Disease Resource Centre - Tarak Ahmed, Director, East Central Ontario  
Toll-Free: 1-800-998-7398 ext 207
Email: smartyn@huntingtonsociety.ca
Website: www.huntingtonsociety.ca
Address:
Huntington Society of Canada
375 Hagey Blvd, Suite 114
Waterloo, ON
N2L 6R5
Location: Waterloo (UW Research and Technology Park)
Accessibility Notes: Services provided virtually or any chosen location
Hours: Mon-Fri 5pm-8pm
Public Contacts: Stephen Martyn - Resource Centre Director
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Service Description: Provides support to individuals with Huntington Disease (HD), persons at-risk, persons who are gene-positive, caregivers and family members, community members, friends and neighbours.

Services are provided virtually and throughout Durham Region and Peterborough area through a Resource Centre Director covering East Central Ontario and includes information and education, short-term counselling, resource counselling and referral, and individual advocacy.

Education and consultation is provided to health, social service and community workers involved in the care of an individual affected by Huntington Disease.

Call the national office to learn more about Huntington Disease clinical trials at 1 800 998 7398 or www.huntingtonsociety.ca

Meetings: Monthly virtual support meetings are facilitated by a social worker and are open to anyone affected by, or caring for someone with, Huntington Disease. To register, contact the Resource Centre Director at 1 800 998 7398 ext 207.

Annual fundraising walks are held in Peterborough and Durham Region during Huntington's month in May
Fees: No fees
Languages: English
Area Served:
Durham Region, City of Peterborough, Kawartha Lakes, Haliburton and Northumberland Regions.  
See Also: Diseases and Conditions Support Groups
Genetic Disorders

This information was last completely updated on October 23, 2025

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© 2025, Ontario Health atHome

Updated October 23, 2025
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"About Us"
Huntington Disease (HD) is an inherited brain disorder. About one in every 10,000 Canadians has HD, but one in every 1,000 are touched by HD whether at-risk, as a caregiver, family member, or friend.