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Organization:
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Canadian Organization for Rare Disorders
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Phone Numbers:
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416-969-7464
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Toll-Free:
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1-877-302-7273
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Fax:
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416-969-7420
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Address:
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151 Bloor St W, Suite 600
Toronto, ON
M5S 1S4
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Intersection:
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Avenue Rd and Bloor St W
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Location:
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Toronto (Old Toronto)
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Accessibility:
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Wheelchair Accessible
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Executives:
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Cathy Evanochko - Chair
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Service Description:
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National advocacy network for people and for organizations representing people with rare disorders * general information and resources
Proposes national strategies for preventive services, treatments, evidence-informed care, enhanced community supports, sustainable access to therapies, and dedicated research * organizes Rare Disease Day to raise awareness about rare diseases
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Application:
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Visit the website
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Eligibility / Target Population:
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Patients with rare disorders and their families, patient organizations and corporate leaders
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Languages:
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English
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Area Served:
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Canada
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Last Updated:
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6/20/2025
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Service Profile Web Address:
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eng/displayService.aspx?id=163953
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