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Organization:
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Canadian Organization for Rare Disorders
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Address:
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c/o Hilary Wong-Rieger
212 King St W, Suite 600
Toronto, ON
M5H 1K5
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Map
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Service Description:
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National advocacy network for people and for organizations representing people with rare disorders * general information and resources
Proposes national strategies for preventive services, treatments, evidence-informed care, enhanced community supports, sustainable access to therapies, and dedicated research * organizes Rare Disease Day to raise awareness about rare diseases
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Eligibility / Target Population:
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Patients with rare disorders and their families, patient organizations and corporate leaders
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